https://ogma.newcastle.edu.au/vital/access/ /manager/Index ${session.getAttribute("locale")} 5 The caregiving perspective in heart failure: a population based study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:14567 Wed 11 Apr 2018 16:06:32 AEST ]]> Acute hospital-based services used by adults during the last year of life in New South Wales, Australia: A population-based retrospective cohort study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:24920 3 care episodes (median 2); 35% stayed a total of >30 days in hospital (median 17); 42% were admitted to 2 or more different hospitals. Twelve percent of decedents spent time in an ICU with median 3 days. In the metropolitan area, 80% of decedents presented to an ED and 18% had >3 presentations. Overall 55% died in a hospital or inpatient hospice. Although we could not quantify the extent and type of palliative care, 24% had mention of "palliative care" in their records. The very elderly and those dying from diseases of the circulatory system or living in the least disadvantaged areas generally had lower hospital service use. Conclusions: These population-wide health data collections give a highly informative description of NSW hospital-based end-of-life service utilisation. Use of hospital-based services during the last year of life was common, with substantial variation across sociodemographic groups, especially defined by age, cause of death and socioeconomic classification of the decedents' place of residence. Further research is now needed to identify the contributors to these findings. Gaps in data collection were identified - particularly for palliative care and patient-reported outcomes. Addressing these gaps should facilitate improved monitoring and assessment of service use and care.]]> Wed 11 Apr 2018 15:25:07 AEST ]]> Discrepancies between proxy estimates and patient reported, health related, quality of life: minding the gap between patient and clinician perceptions in heart failure https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:46335 r = 0.38; p < .0005). Mean clinician estimates were higher than patient reported utility (0.60 vs 0.54; p = 0.008), with significant underestimation of reported problems apparent in three of the five EQ-5D-5L domains. Patient sex (female), depressed mood and frailty were all associated with an increased inter-rater gap.Conclusion: Clinicians in this sample overestimated HRQoL. Factors affecting the inter-rater gap, including sex and depression, support formal HRQoL screening to enhance clinical conversations and decision making. The discrepancy also supports regulatory restriction on the use of expert opinion in the development of QALYs in health economic analysis.]]> Tue 15 Nov 2022 12:55:55 AEDT ]]> Effects of facilitated family case conferencing for advanced dementia: a cluster randomised clinical trial https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:30664 Thu 02 May 2019 11:11:55 AEST ]]> Value of web-based learning activities for nursing students who speak English as a second language https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:13342 Sat 24 Mar 2018 08:17:24 AEDT ]]> Can a heart failure-specific cardiac rehabilitation program decrease hospitalizations and improve outcomes in high-risk patients? https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:10475 Sat 24 Mar 2018 08:09:16 AEDT ]]> An integrative and socio-cultural perspective of health, wealth, and adjustment in widowhood https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:20125 Sat 24 Mar 2018 07:51:44 AEDT ]]> Acute heart failure admissions in New South Wales and the Australian Capital Territory: the NSW HF Snapshot Study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:29321 Sat 24 Mar 2018 07:34:23 AEDT ]]> Australian long-term care personnel's knowledge and attitudes regarding palliative care for people with advanced dementia https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:46409 Mon 21 Nov 2022 11:52:39 AEDT ]]> Clinician Estimates of Frailty Compared to Formal Frailty Assessment in Adults With Heart Failure: A Cross-Sectional Analysis https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:51406 Mon 04 Sep 2023 14:52:33 AEST ]]> Health-related quality of life in people with advanced dementia: a comparison of EQ-5D-5L and QUALID instruments https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:42248 r = − 0.437; p < 0.001 at 12 months). Changes within QUALID and EQ-5D-5L across the same follow-up periods were also correlated (r = − 0.266; p = 0.005). The regression analyses support these findings. Conclusion: Whilst these quality of life instruments demonstrated moderate correlation, the EQ-5D-5L does not appear to capture all aspects of quality of life that are relevant to people with advanced dementia and we cannot recommend the use of this instrument for use within this population. The QUALID appears to be a more suitable instrument for measuring HRQOL in people with severe dementia, but is not preference-based, which limits its application in economic evaluations of dementia care.]]> Fri 19 Aug 2022 12:03:27 AEST ]]> Comparison of six frailty instruments in adults with heart failure: a prospective cohort pilot study https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:50832 Fri 18 Aug 2023 10:34:35 AEST ]]> Facilitating needs-based support and palliative care for people with chronic heart failure: preliminary evidence for the acceptability, inter-rater reliability, and validity of a needs assessment tool https://ogma.newcastle.edu.au/vital/access/ /manager/Repository/uon:20126 Fri 10 Mar 2023 18:52:55 AEDT ]]>